Support vital programmes for parents of children with brain tumors and brain cancer

When a child is diagnosed with a brain tumor, brain cancer, just overwhelming initial impact of news on the family. This is a crucial time for the patient, parents and families, as well as friends. Time is often essential, quick decisions and prompt action is required, usually in split seconds, change their lives forever.

And thus begins a long and difficult road trip. Where parents go for information? Who turn out to support? How will they know what is best for their children? These families must have the resources available to them to assist them in making crucial decisions they face now.

Thankfully, there are a number of exceptional family support and education programs sponsored by non-profit organizations focusing on children's brain tumors and brain cancer. These programmes provide valuable resources for education and assistance and support. While there are many reasons for parents of children with brain tumors to connect with a support group, three of the main reasons discussed below.

Education

The first questions parents of newly diagnosed children with brain tumors and brain cancer "what does this mean for my child?"

Family support and education programs can answer this and countless other issues by providing resources to public awareness of the disease and treatment options and even better facilities equipped to available treatments. Family support programmes also help keep abreast of the latest research being done regarding treatment, survivorship, and long-term effects of survivors of the deadly disease.

Assistance

Can bring assistance to families with the difficult journey in a variety of shapes. These may include locating the right doctors and child care facilities, or perhaps, running through the maze of red tape and insurance forms. Find financial aid options, or to find local resources for supplies or services that may be required for the care and rehabilitation of the child are also ways that support groups can provide assistance to these families.

In addition to assistance provided to individual families, these non-profit organizations working tirelessly to promote and provide comprehensive services job-finding the best treatments for children with brain tumors and brain cancer, and improving quality of life for survivors.

Support

Foremost, the parents and loved ones of these children need emotional support. Must belong to a group of people who travel the same long road, which they find themselves on. They need to know they aren't alone in their journey.

Cannot find emotional support which are so freely in family education programs anywhere outside this unique groups of parents, sisters and brothers. Who better understand sadness or see when she learns that her instincts about health of the child have right? Or sadness that consumes father when finally allowed himself to cry, alone in the bathroom? And who better to share joy when family transitions to survivorship?

The family support groups not only support to parents and extended families, but for patients, as well. Understanding the losses this terrible journey on everyone sponsoring most groups support a variety of conferences, camps and other events throughout the year as a respite for families. These events provide opportunities for networking with others in this unique community, while also getting idea about educational and occupational opportunities.

Recognizing the many needs of the bereaved families and surviving families, also, there are also support groups that are specifically designed to meet the needs. Some of these groups have mentors, parents who stood in the same shoes, working with their families in a number of ways to navigate through difficult transitions.

Education. Assistance. Support. Contact support is a fundamental right of parents and families facing this difficult journey. Parents, you are not alone. Help in call waiting.

This article written by Joe Fay, Executive Director, "brain tumor foundation for children. For more information, or to donate, please http://www.cbtf.org/visit. Contact Fei Jo jfay@cbtf.org or at 800-228-4727. This article is free to be reprinted as long as there is no change.

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