Today most of us will, like any other day. We will sip our coffee morning paper, walmkshod and children in school and perform the usual rituals that make up our everyday lives. The good, the bad, and Yes, even somewhat ugly; all will address with confidence and feeling comfortable, knowing that tomorrow, as routine anyway, we'll get it all over again.
But, for many families across America will be different today. Today will be life changing.
Today ...
• Nine families will learn their child has a brain or spinal cord tumor;
• Three families will mourn the loss of her child because of this terrible disease;
• Six families will be moving to survivorship.
Each year, approximately 3,400 children are diagnosed in the United States with a brain tumor, brain cancer. Nearly one third of these children no more than five years, making this the most deadly of all childhood cancers. The families of these children will never last "normal" day. Will now fill their days with medical appointments, treatment options, and learn how to work with a new definition for "normal."
Thankfully, hope springs eternal. The survival rate for children with brain tumors and brain cancer has increased significantly over the past twenty years. Has led to further research into better treatment methods, improving quality of life and long-term Outlook for these young patients. However, brings with it the survival of a new set of unique challenges. Treatment can cause damage delayed the surviving; effects ranging from cognitive impairment, physical challenges and social isolation.
Collaborations among non-profit organizations, research institutions and leading medical institutions proved to be an effective tool in combating these cancers in childhood. These groups by joining forces, able to connect better to better maintain forward research and public awareness, and support for patients and their families who need them.
Created several non-profit organizations over the years to provide help to families who find themselves in this way new life and very difficult. Most of these groups provide resources for education, medical assistance and the necessary financial and emotional support through a variety of family education programmes and special events.
These non-profit organizations working tirelessly in its battle to have brain tumors and pediatric brain cancers in the past. They are looking for research partners and corporate sponsors and foundations to help support ongoing research. Donations from individuals are also critical to the success of these organizations. While a lot of work, progress, and the need to raise awareness and funding research and offering support.
Quick search in the Internet and a few simple clicks of the mouse will land you on the website of one of these dedicated organizations, non-profit. Once there, is likely to find an abundance of valuable information, resources and opportunities to help. Why not spend some time today to learn more about this devastating disease? Perhaps, donation, or signing up as a volunteer. Not only can you help to redefine the "normal" for these children and their families; only change your idea of "natural", as well.
This article written by Joe Fay, Executive Director, "brain tumor foundation for children. For more information, or to donate, please http://www.cbtf.org/visit. Contact Fei Jo jfay@cbtf.org or at 800-228-4727. This article is free to be reprinted as long as there is no change.
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